I love your take on things. Asking for help is the hardest thing I will have to overcome when it comes to be my time that I lose my independence. As you have found, it could happen when you least expect it! I will try to heed your advice when that happens. Thanks for this!
Hi Athena! I’m Sam. I believe we’re mutuals on Threads.
This is an incredible and very vulnerable article and I applaud and respect you so much for publishing it!
I resonate with SO much you write about. I’ve been chronically ill since 12 and have had over 30+ surgeries on my back. Last back surgery eventually led to me to being paralyzed from the waist down and now bedbound 90% of the time. Had times in my life where I couldn’t feed myself either. I had all the tubes you can think off. (And some you’ve never heard of that is awful.)
This has been my reality for the last 4 years and the loss of my freedom has arguably been one of the hardest things for me to adjust to. I’ve been fiercely independent my entire life. I’ve had bouts when I had no choice (I’ve had two rounds of being in the hospital for 2 months at a time and my longest hospital stay was 5 months.) But I was stubborn and was able to pull my life back together every time my health dipped, all the way until 4 years ago.
I’m gonna stop here because at this point, this comment is way too long. (Sorry!) I’m just going to leave you with this:
We have different illness types. You’re definitely at a different point in life as I am. But all that being said. We have a lot in common medically and situationally. I’m always upset and lonely because I'm the sickest person I know. It just would be nice to chat, if you are cool with it. My Instagram is @masterofescapism7
(So so so sorry this is so long. I just resonated with this post so so much.)
Hi Sam, I recognize your avatar. ☺️ Thanks for coming all the way from Threads to check out the article. I believe we’re mutuals on Instagram as well.
I’m glad to hear that the article resonated so much with you. I’ve been writing about my lengthy recovery adventure since I got hurt back in March as a way to both pass the time and make sense of what I’ve been going through. If you’re interested, you should also check out Athena’s Art Newsletter - https://athenacreative.substack.com/ - for more articles like this one.
Being born with my disability, I feel like I’ve been granted a different perspective than someone who has fallen into their disability later in life where it can feel like a sharper, deeper loss. While I have recovered from between 30 to 40 bone fractures from both accidents and surgeries, there’s also a sense of normalcy to it. These are the cards I’ve been dealt and I’m going to play them the best that I can. No question it can suck a great deal sometimes and there is grief that I will need to process as my disability changes as I age, but I’m making the conscious choice to live my life to the fullest.
I love your take on things. Asking for help is the hardest thing I will have to overcome when it comes to be my time that I lose my independence. As you have found, it could happen when you least expect it! I will try to heed your advice when that happens. Thanks for this!
You are very welcome. I feel like my disability just accelerates what is a very universal experience.
Hi Athena! I’m Sam. I believe we’re mutuals on Threads.
This is an incredible and very vulnerable article and I applaud and respect you so much for publishing it!
I resonate with SO much you write about. I’ve been chronically ill since 12 and have had over 30+ surgeries on my back. Last back surgery eventually led to me to being paralyzed from the waist down and now bedbound 90% of the time. Had times in my life where I couldn’t feed myself either. I had all the tubes you can think off. (And some you’ve never heard of that is awful.)
This has been my reality for the last 4 years and the loss of my freedom has arguably been one of the hardest things for me to adjust to. I’ve been fiercely independent my entire life. I’ve had bouts when I had no choice (I’ve had two rounds of being in the hospital for 2 months at a time and my longest hospital stay was 5 months.) But I was stubborn and was able to pull my life back together every time my health dipped, all the way until 4 years ago.
I’m gonna stop here because at this point, this comment is way too long. (Sorry!) I’m just going to leave you with this:
We have different illness types. You’re definitely at a different point in life as I am. But all that being said. We have a lot in common medically and situationally. I’m always upset and lonely because I'm the sickest person I know. It just would be nice to chat, if you are cool with it. My Instagram is @masterofescapism7
(So so so sorry this is so long. I just resonated with this post so so much.)
Hi Sam, I recognize your avatar. ☺️ Thanks for coming all the way from Threads to check out the article. I believe we’re mutuals on Instagram as well.
I’m glad to hear that the article resonated so much with you. I’ve been writing about my lengthy recovery adventure since I got hurt back in March as a way to both pass the time and make sense of what I’ve been going through. If you’re interested, you should also check out Athena’s Art Newsletter - https://athenacreative.substack.com/ - for more articles like this one.
Being born with my disability, I feel like I’ve been granted a different perspective than someone who has fallen into their disability later in life where it can feel like a sharper, deeper loss. While I have recovered from between 30 to 40 bone fractures from both accidents and surgeries, there’s also a sense of normalcy to it. These are the cards I’ve been dealt and I’m going to play them the best that I can. No question it can suck a great deal sometimes and there is grief that I will need to process as my disability changes as I age, but I’m making the conscious choice to live my life to the fullest.